Lili Claire Foundation hopes to build clinic on land donated by Henderson


After his daughter Lili Claire died from complications of a neurogenetic disorder nearly five months after being born, Keith Resnick decided to do something to help other children with similar medical conditions.

The Lili Claire Foundation provides resources and support to families with children with disorders ranging from Down s yndrome to Williams syndrome, which his daughter had.

"Six percent of children are born with a neurogenetic disorder," Resnick said. "Yet there isn't a place that provides specific and exclusive care that addresses these issues."

Resnick thinks Henderson will be that place. And now that the city of Henderson has donated 5.3 acres near the corner of Paradise Hills and Compassion drives near Nevada State College, it could be possible.

"I am just very grateful," Resnick said.

Kathleen Richards, a spokeswoman with the city of Henderson, said initial talks began in May 2007.

"(The Nevada Revised Statute) gives the city the ability to convey real property to a corporation to public benefit," Richards said. "During that time, the foundation must provide sufficient evidence that it has the financial resources to build Phase 1 or the land will revert back to the city."

Richards said the deed contains a restriction that the property has to be used for a clinic.

Resnick, an admirer of the founders of St. Jude Children's Hospital, hopes to offer care to children with neurogenetic disorders like St. Jude does with childhood cancer.

He plans to spend the next year raising money and hopes the facility will break ground sometime in 2013.

Resnick doesn't know the exact cost of the center because plans or designs haven't been created. However, he said an estimate might be $20 million to $25 million.

"I'm happy with that number," Resnick said. "That seems achievable."

Resnick hopes the center will have three phases.

The first phase is supposed to be the genetics clinic, which would provide diagnostic evaluation, treatment, medical advice and consultation for individuals with conditions.

According to Richards, the first phase must be under construction by the sixth year of it being gifted.

"If the Phase 1 improvements are not completed by year eight , the property reverts back to the city," Richards said.

The second phase, which would open a year after the first phase, would offer vocation training for children with special needs. The final phase would be a small retail center with shops and restaurants, and those businesses would be required to offer internships to those in the Lili Claire program.

"We will monitor them closely," Resnick said. "We will learn what they are good at and not so good at. We will learn what their dreams are and be able to design curriculum that meets those dreams."

Even though the idea has similarities to Union Village, the proposed health and retail area at Galleria Drive and U.S. Highway 95, Resnick thinks the Lili Claire development is different.

"We are nowhere near the scope of Union Village," Resnick said.

Resnick said the Lili Claire center would focus on children while Union Village has a broader scope.

"We do hope to partner with Union Village, though," Resnick said. "Hopefully they consider building a children's hospital. We are in talks with them to make sure we don't duplicate services."

Resnick plans to partner with Nevada State College, offering a place for nursing students to use their education.

"It's one thing learning nursing on a chalkboard or in a text book," Resnick said. "It's another thing to learn in a petri dish of learning and have hands-on experience. We are working very closely with Nevada State. Looking forward to working with them and building a curriculum that support their students."

Contact Henderson/Anthem View reporter Michael Lyle at mlyle@viewnews.com or 387-5201.

 

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